Fuck cancer.
Take back some control.
I'm Russ. I've had stage 4 bowel cancer since 2021. FC:AI is where I share everything: my data, the AI tools I use, and what's actually helped. It's for patients and carers who want a bit more control, and for anyone who might know something I don't.
Right now: Cycle 3 of FOLFIRI + cetuximab rechallenge · profile updated 17 September 2026
My whole cancer, on one card
Diagnosis, genetics, chemo and doses, latest bloods, scans, what I'm taking and what I'm looking for. One page, always the latest version, free to download.
Behind it sits the full record: every blood test since April 2025, every scan, the genomics and a daily chemo log. It's all public, because the more people who can see it, the more chance someone spots something.
Three things worth reading
Why I'm open sourcing myself
You already have a huge amount of information about yourself. Pulled together, it's useful to every doctor, nurse and second opinion you ever see. And the more people who see mine, the better my odds.
Read why → So farWhat it's done for me
A genetic specialist in Australia. The vaccine team at Serova. A specialist in Argentina. A US platform that's become my best sounding board. None of that happens if the data stays in a drawer.
See what's happened → ToolsThe tools I actually use
Gemini Gems that track chemo from my voice, a NotebookLM vault of every record I have, advisor Gems built from years of notes, and Radical Health.
See the tools →Who I'd love to hear from
People who know this cancer
Patients with a similar profile, oncologists, scientists, geneticists. Is there anything else I should be doing?
Companies building AI for patients
Talk to patients before you go full speed. Advisory, patient-voice input on products, and speaking.
Cancer charities
Working out how to use AI and modernise? I've been using it through treatment every day, and I'd love to be involved.
Patients and carers
Would it help to sit down, on a call or in person, and set some of this up together? Register your interest in a workshop.
Where this has turned up
Health Awareness
"I have stage 4 cancer — AI is how I took back control", in Mediaplanet's supplement with the Guardian.
InterviewBusiness Insider
The three ways I use AI to make treatment a bit easier.
PodcastsFaces of Digital Health · Timewise
The agentic patient, and working through treatment.
StageHIMSS Europe
The patient on the panel, Copenhagen 2026.
Day to day, I'm on LinkedIn
Most of what I write goes on LinkedIn first. If you want to keep up with what I'm doing week to week, follow me there. The blog here is for the posts that need a permanent home.
Why I've changed FC:AI, and what it is now
Less "here's how to build a tool". More "here's everything, go and do something useful with it".
I'm Russ
I was diagnosed with stage 4 colorectal cancer in 2021. It's incurable but treatable, and I'm still being treated. I spent almost 20 years in PR and communications, and I'm based in Bath.
I use AI every day to manage treatment: tracking chemo, keeping my records in one place, and asking better questions. FC:AI is where I share it, with no pink ribbons and no bullshit. I've spoken about it on the main stage at HIMSS Europe, in Health Awareness (distributed with the Guardian), in Business Insider and on a couple of podcasts.
I also run Known & Cited, an AI brand intelligence company. Different project, same person.
⚕️ FC:AI does not offer medical advice. It's my data and my experience, shared openly. Your medical team handles the medicine.