If you've been here before, you'll notice things look different.
FC:AI started with me building AI tools and writing guides on how to build your own. A chemo tracker. A medication manager. A medical archive. I'm proud of them, but if I'm honest, I'm not sure how useful "here's how to build it" has been for most people. When you're three days post-chemo, the last thing you want is a set-up guide.
What has been useful is the thing I was most nervous about. Putting my data out there.
What happened when I published everything
Earlier this year I started open sourcing myself. Bloods, scans, genetics, my protocol, my daily chemo log. All of it.
Since then I've been talking to a genetic specialist in Australia about mapping my whole genome. To vaccine specialists in the UK and in Argentina. And it led me to Radical Health, which is now the best tool I use. That's all here.
None of that happens if the data stays in a drawer.
So, what is FC:AI now?
It's a source of information for cancer patients and carers who want to take back a bit more control. And a place to point people in the right direction.
In practice, that's four things:
- Open Source Me. My live cancer profile, updated every two weeks with my chemo cycle. At the top of it is a one-page card: my whole cancer on a sheet of A4 that any doctor, nurse or second opinion can download or copy into an email.
- Why I'm doing it. Because you already have loads of information about yourself, and it's far more useful in one place. And, selfishly, because more eyes on my profile means more chance someone knows something that helps.
- What it's done so far, and my ask: is there anything else I should be doing? (Specialists and people who understand my cancer only, please. I've had my fill of juice recommendations.)
- The tools I actually use. Not how to build them. What I use and why: Gemini Gems, NotebookLM, and Radical Health.
The blog
Most of my writing goes on LinkedIn first. If you want to keep up day to day, that's the place. I'll still post here when something needs a permanent home.
Who I'd love to hear from
I'm always interested in new people, good ideas and new ways of working together.
Especially companies building AI for patients who want to talk to actual patients about it, rather than going full speed without any guidance on what matters most to us. And cancer charities working out how they should be using AI and how to modernise. I'd love to be involved with both.
And if you're a patient or carer who'd like to sit down, on a call or in person, and go through setting some of this up, tell me. I don't know yet if workshops are what people want. If they are, I'll run them.
— Russ